I went to see my ENT recently who has tested me for sleep apnea, which I don't have. He now believes that I have either narcolepsy without cataplexy or idiopathic hypersomnia. The second is a catch all for people who are constantly fatigued which has lasted for over 6 months. Now 2 years into this, I'm happy to be close to a diagnosis. It's hard to imagine, but I sleep a lot, like 12 to 16 hours without ever feeling rested or fully awake. I miss that feeling of waking up in the morning totally alert and ready to start the day after a "good night's sleep." The next test I have to do is the "Multiple Sleep Latency Test." I hate all the paste they put on my head, and the strange little room they stick me in to sleep. The ceiling wasn't flush with the walls, and light seeped in when I was trying to fall to sleep while uncomfortable, tethered to the wall, and covered in clumps of paste. Once I finish that study, I will be able to get treatment... which is amphetamines.
This is not to say that I am lying about my symptoms or lying to get this medication (I don't think anyone would choose to do this). I just really love amphetamines and need to lose weight. When the doctor said this, I was amazed as I looked at my mother nodding. I am so excited.
The future is looking bright!
-Lucy
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